LINKS TO USEFUL RESOURCES

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National Disability Charities:

Ambitious About Autism – a national charity whose ambition is to make the ordinary possible for more children and young people with autism.

Autism Independent UK – Seeks to increase awareness of autism and approaches for diagnosis and assessment.

ADHD Foundation – Awareness and understanding of Attention Deficit Hyperactivity Disorder (ADHD), a condition characterised by inattentiveness, hyperactivity and impulsivity.

Afasic – Inclusion of children and young adults with speech and language impairments.

Brain Injury Hub – Information on acquired childhood brain injury.

British Dyslexia Association –  provides support to dyslexic people.

British Institute for Brain Injured Children (BIBIC) – Support for families caring for disabled children.

British Institute of Learning Disabilities (BILD) – Support for people with learning disabilities and family carers.

Carers UK – Acts as a voice for UK carers.

Cerebra – National charity which aims to improve the lives of children with neurological conditions.

Cerebral Palsy supporting people who are affected by Cerebral Palsy

Child Autism UK –  is an autism charity based in Ascot, Berkshire which provides information and support for parents of children with autism.

Cystic Fibrosis Research Trust – Funds research and provides clinical care and support for people with Cystic Fibrosis.

Down’s Syndrome Association – Information and support for people with Down Syndrome and those who work with them.

Foundation for People with Learning Disabilities – Works to influence government and local authority policies and services.

Mencap – The Voice of Learning Disability.

National Youth Advocacy Service – Information, advice, advocacy and legal representation to children and young people.

The National Autistic Society – Founded in 1962, are the UK’s leading charity for autistic people and their families. Their goal is to help transform lives, change attitudes and create a society that works for autistic people.

Scope– dedicated to equality for disabled people in society.

Local Disability Charities and Support Groups:

Autism Hampshire – Creating opportunities, challenging perceptions, enhancing choices and providing high quality services to meet the diverse needs of people on the autism spectrum.

Dynamite Portsmouth – help people in charge of making services for young people in Portsmouth to listen to the opinions of young people with disabilities.

Family Autism Spectrum Support – helps families coping with autism in Hampshire and West Sussex.

Minstead Trust – provides training and support for people in Hampshire with learning disabilities to enable them to develop new skills, lead fulfilled lives and achieve greater independence.

Portsmouth City Council – provides support for adults with a learning disability

Portsmouth Down Syndrome Association – committed to improving the lives of children and their families, in Portsmouth and South Hampshire, by providing friendship, support and an extensive range of educational services from birth

Portsmouth Local Offer – is a resource for children, young people and their families with a special educational need or disability in Portsmouth.

Portsmouth Parent Voice – offers support and advice to families with children with special needs

Portsmouth SENDIASS – The Special Educational Needs and Disability (SEND) Information, Advice and Support (IAS) Service for Portsmouth

Stand Up – A support group for parents & carers of special needs children. Set up & run by parents with SEN children. (Facebook page)

Information, Support, Training and Education:

The Autism Directory – Find autism related resources in your local area and beyond.

My Cause UK – helps charities to provide staffing at festivals and thus improve their fundraising.

hi2u – an award winning site. Centred around ADHD, Asperger syndrome, dyslexia, and similar neurological differences along with any other type of hidden impairment.

Cerebra – Cerebra has an extensive postal lending library which contains many books on autistic spectrum disorders.

Cerebral Palsy Guide – this is a US-based site and whilst many of the support resources are not available due to geography the site provides a very complete set of information about the condition.

Cerebral Palsy Guidance – this is another US-based site referred to us by Jennifer LaRocco who lives with CP herself. The site is very well resourced and informative although readers should not connect to the financial support pages which do not apply in UK.

Dr. Tony Attwood – a site with lots of information about Asperger syndrome.

College Admission Guide for Students with Disabilities – a useful research paper written by Alyssa Johnson that explains the process for college or university applications, the financial implications and links to other useful resources relevant to the process.

Transition to Adulthood: Home Re-modeling for Young Adults with Special Needs – A US-based site with some generic thinking about house design for families with special needs requirements. Note some resources point to US-centric agencies that may not be relevant to the UK.

Counselling Directory – The purpose of the site is ultimately to provide the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. 

FOXP1 Syndrome– a report on research by the The Seaver Autism Center for Research and Treatment, New York on a genetic cause for autistic-like behaviours.

12 THINGS EVERY NEWLY DISABLED PERSON SHOULD DO RIGHT NOW: A useful guide from a quotation website that’s offers some practical advice for people with physical disabilities.

Disabilities and Weight Gain – A Guide to Studies and Data: This resource is provided by a Mexican-based company called Renew Bariatrics who specialise in weight management with a focus on different user groups including people with disabilities and includes sign-posting to other UK resources within government bodies such as NHS.

Trainline reduced fares for people with disabilities – details of how to get reduced fees for rail and other transport at Trainline.com with a Disabled Persons Railcard.